Upside Down and Backwards

Childhood Cancer Awareness Month – September 2014

Upside Down9781433816383_p0_v1_s260x420Upside Down and Backwards: A Sibling’s Journey Through Childhood Cancer

Julie Greves, Katy Tenhulzen, and Fred Wilkinson, Authors

Magination Press, Fiction, May 12, 2014

Suitable for Ages: 8-13

Themes: Cancer, Siblings, Family Relationships, Feelings,

Book Summary: Ever since his first ride, Bryce has been obsessed with roller coasters. The hiss of the ride starting, the anticipation, the slow climb up the first steep hill, the pause just before the car careens over the steep drop. But when Bryce’s sister Paige is diagnosed with cancer, his life become one of the craziest roller coasters he would ever ride. His parents are suddenly distracted and stressed. It seems like Paige always gets her way. Brice has trouble keeping up with school. He misses out on time with his friends. And he worries about Paige. Will his family ever get back to normal?

Why I like this book:  The roller coaster is the perfect metaphor for a sibling’s journey through childhood cancer. It is written in a matter-of-fact and understandable way. The story is vivid, realistic, upbeat and honest. It focuses on real-life issues for siblings and family members. I especially like that the book emphasizes recovery rather than dealing with a loss. Bryce narrates the story and the authors did an excellent job of exposing the confusing emotions of his character. Bryce’s world is turned upside down and backwards because his sister is diagnosed with cancer. He feels like he’s also riding the “cancer coaster.” There are midnight trips to the emergency room with Paige, but no one bothers to tell him. He feels forgotten when his parents don’t pick him up after school or don’t make a baseball game where he hits his first home run. Yet he cares about his sister and shaves his head when she loses her hair to chemo treatments. A sibling support group become a refuge because the other kids actually get what his life if like. The authors really got this story right and I highly recommend it for siblings of cancer patients and their parents.

Resources: There is a very helpful six-page guide at the back of the book with suggestions for siblings on how to take care of themselves, stay connected, talk to friends, discuss their feelings, deal with guilt, seek out a support group, and face  the future.

About the Authors: The authors share a passion for supporting patients and their families throughout the entire cancer journey in their work at Seattle Children’s Hospital. This passion  motivated them to write a book and create resources for siblings.

Julie Greves, CCLS,  is a certified child life specialist, where she has spent over 10 years working with pediatric oncology patients. Katy Tenhulzen, CCLS, is a certified child life specialist who has had the opportunity to support pediatric hematology and oncology patients and families since 2002.  Fred Wilkinson, LICSW, has been an oncology social worker focusing on psychological trauma since 2001.